These young female athletes died by suicide. They all had head injuries in common

These young female athletes died by suicide. They all had head injuries in common



CNN
 — 

Kelly Catlin and Ellie Soutter never met, but they had a lot in common.

Both were commanding athletes: Catlin, a US track cyclist, was a three-times world champion and Olympic silver medalist, and Soutter, a snowboarder, was tipped to be one of Team Great Britain’s strongest contenders for the 2022 Winter Olympics, having already won a bronze medal at the 2017 European Youth Olympic Festival.

Both were incredibly smart – Catlin was studying for a master’s degree in computational and mathematical engineering at Stanford University, while Soutter learned to speak French in about six months, according to her father.

At times they almost seemed superhuman. In 2013, after only three weeks of formal training and having broken her wrist, Soutter became British Champion with her arm in a cast. Meanwhile, Catlin, who had a tenderness for children, once rode 80 miles through sleet and snow to speak to a grade school about her Olympic experience.

Kelly, left, in the the LA velodrome just before departing for Rio and the Olympics. The team is practicing starts.

Yet these two women’s lives were tragically cut short after they sustained serious head injuries in their pursuit of sporting greatness and then took their own lives. Catlin was 23, while Soutter died by suicide on her 18th birthday.

Females may be more susceptible to concussion, and they also have worse and prolonged symptoms after their injury than men, according to a review of 25 studies of sport-related concussion published in the Orthopaedic Journal of Sports Medicine.

However, women remain significantly underrepresented within sport and exercise science research. This, leading experts warn, means they often do not get the treatment or aftercare they need following a head injury.

Ellie Soutter was tipped to be one of Team GB's strongest contenders, and became British Champion with her arm in a cast.

Women’s sports have historically not received the same attention or funding as men’s sports, Dr. Ann McKee, Director of the Boston University Chronic Traumatic Encephalopathy (CTE) Center told CNN.

“It’s been shown that women athletes are more likely to get a concussion, they tend to have longer recovery periods,” McKee added.

“We do not have enough information about what happens in the female brain. We don’t know if women are biologically more susceptible to these injuries,” she said, adding that some research suggests the size and musculature of women’s necks could play a part.

Kelly, pictured at the  National Sports Center in Blaine, Minnesota after the Olympics (2017), where she would sometimes go for workouts when she was home from university.

Before becoming a track cyclist, Catlin, a triplet, was a national champion road cyclist and time trial national champion, her father Mark, told CNN. After winning a Canadian international race at 17 she was invited to an Olympic training camp for a try out, where, impressed by her performance numbers, coaches immediately offered her a position on the track pursuit team.

Catlin’s father, Mark, told CNN, that his daughter was “intense” and “ambitious,” attributes she channeled into her sporting life.

Her life changed irrevocably in January 2019. Practicing fast downhill descents in the hills near Los Angeles, she crashed and went skidding down the road. Despite suffering road rash, Catlin got back on her bike, and finished the ride. It wasn’t her first crash – she had experienced 4 or 5 hard crashes before this, her father said, and after the latest, she didn’t have any symptoms at the time.

But soon after, at a World Cup track event in Berlin, Catlin was gripped by a sudden and severe headache.

“She couldn’t compete,” her father said. “Kelly is kind of this stoical individual. And if she’s rolling around on the ground, clutching her head, it has to be a severe thing.”

On closer inspection, Catlin’s helmet from LA had dents in it. Her father told CNN that this, coupled with her symptoms, caused her family to become aware she had suffered a concussion, which was later confirmed with a diagnosis from Stanford’s Health Centre.

Kelly, with her team and silver medal, representing USA in the Womens Team Pursuit at the Rio Olympics.

A concussion is a brain injury which happens after a hit to the head or body causes the brain to move back and forth inside the skull, according to the CDC.

When Catlin returned to the US, her father says she was examined by the track training center in Colorado. It was confirmed she suffered a concussion, and a return to training protocol was advised, but not implemented or communicated to her coach, he said.

“There wasn’t any follow-up from Colorado after this. I believe they assumed she would seek care at Stanford,” he told CNN.

CNN has reached out to Stanford and USA Cycling for comment.

Catlin’s symptoms didn’t improve, and in weekly phone calls with her parents, she admitted she was struggling with schoolwork and was unable to concentrate.

Stanford Health Center, having diagnosed Catlin with concussion with ongoing symptoms, recommended that she decrease her training for 2 weeks and then gradually build back up and start sessions with an athletic trainer, medical documents sent to CNN by her father show. She was referred to a concussion specialist, the document adds.

She tried to train, but “she would have to stop because she got a severe headache just from walking,” according to her father. Her heart rate would also accelerate rapidly from even the smallest exertion, leaving her with “no exercise tolerance whatsoever,” he added.

Her injury had other consequences.

“As far as we knew she was never a person that suffered from depression. She had an interesting sense of humor. She was always upbeat and bubbly about things,” her father told CNN.

Kelly signing pictures from the Olympics for fans in the family home in Arden Hills, Minnesota. Kelly continually received requests for autographed pictures from fans, particularly from Europe, and a surprising number from Germany, her father said, adding that she always responded.

“She basically thought her life was over. She was no longer able to be the athlete that she was, she was failing her teammates. And she wasn’t able to succeed in school now. And I think ultimately, that’s why she took her life, because she thought her life was over,” he added.

At the end of January, Catlin made a serious but non-fatal suicide attempt, and was involuntarily admitted to the locked psychiatric ward at Stanford, her father told CNN.

A month after that attempt, she took her own life.

Ellie suffered several major concussions in five years.

Soutter’s father Tony said there were many dimensions to his young daughter – not only was she an “adrenaline junkie,” but she was “very conscientious” and excelled in school, even after moving from England to France.

Aged 12, Soutter took up snowboarding at school – and just months later, she was spotted in her hometown resort of Les Gets and trialed by Team Great Britain in February 2013.

“It was quite obvious why she kept winning competitions because she just made it easy,” her father said. “She just made it look graceful and beautiful.”

But training took its toll – Soutter told CNN that his daughter suffered seven major concussions in five years, between 2013 and 2018.

“I was being advised by doctors “Oh, don’t worry, she’s young enough she’ll bounce back. As she progressed, becoming an elite athlete starting on the World Cup circuit, every time she had another concussion, they got worse, and they took longer to recover from,” he told CNN.

“With every concussion, with the exception of a few minor knocks, Ellie saw a doctor in person,” he added. “I was always told that she was young enough to bounce back to full health after each case and therefore never consulted with the doctors that I met, about any previous concussions.”

But Soutter’s final concussion was so “huge” that she spent two nights in the hospital.

“When I got there, she didn’t even know who I was or where she was,” her father said.

Soutter was then selected for the Junior Snowboard World Championships in New Zealand August 2018. But a month before the competition, she died by suicide.

Her father said a neurologist conducted a CT scan of her brain and reaction tests three months after her final concussion, but said she was “absolutely fine” and could continue competing.

Like Catlin, Soutter had issues with studying and concentrating, becoming more insular as she suffered from crippling headaches. She also started suffering from insomnia.

“She would literally sit with the tutor a good month after a concussion, and suddenly, she’d go blind. She’d not be able to see – everything would go black and dark,” her father said.

After missing a flight to snowboard training, Soutter died by suicide on her 18th birthday.

Team GB referred CNN to GB Snowsport when approached for comment, adding that Ellie only competed for Team GB at one event.

Not only was ellie an

In order to represent Britain in international competitions, GB Snowsport says athletes or their coaches are required to demonstrate that the athlete has reached established performance criteria, is of the relevant technical ability to compete, and has appropriate medical clearance to compete. A large number of athletes can represent Britain at different levels of international competition but are not part of a programme delivered and overseen by GB Snowsport.

“As Ellie was not part of the GB Snowsport programme, we were unable to implement a personalised recovery and management programme for Ellie,” a spokesperson for GB Snowsport told CNN in an email.

“She was, however, covered by national policies and protocols around fitness to compete, and would not have been cleared for any activity – training or competition – overseen by GB Snowsport without being able to demonstrate appropriate medical sign-off,” they added.

The spokesperson for GB Snowsport told CNN: “We take concussions and head injuries incredibly seriously, and in reviewing contemporaneous records from the time that Ellie was involved in snowsport we are confident that GB Snowsport staff applied and followed every appropriate process.”

Catlin and Soutter aren’t the only young sporting women whose lives have been cut short in this way.

After 29-year-old Australian rules football player Jacinda Barclay took her life in 2020, post-mortem research by scientists found that she had degradation to her cerebral white matter unusual for someone her age.

“For someone her age, you would expect to see lovely pristine white matter, and hers looked like she was an old woman in that it was basically degraded,” Michael Buckland, founder and Executive Director of the Australian Sports Brain Bank, who studied Barclay’s brain, told CNN.

“We haven’t gone back and done specific white matter studies on our donors,” he told CNN, adding that the bank hasn’t done peer reviewed research on this. “But what struck me, just as someone that sees a lot of brains – this is not normal for someone of that age.”

Damage to white matter has been associated with dementia, according to research published in the Journal of the American Medical Association.

Suicide after concussion is rare. However patients diagnosed with concussion or mild traumatic brain injury had double the risk of suicide and a higher risk of suicide attempts and suicidal thoughts than people without brain injuries, a 2018 study from researchers at the University of Harvard published in JAMA Neurology found.

Dr. Robert Cantu, clinical professor of neurology at the Center for the Study of Traumatic Encephalopathy at Boston University School of Medicine told CNN that there are several theories as to why incidence of suicide is higher in people who have suffered concussion.

One theory, he explained, is that those suffering from persistent post-concussion symptoms may have structural or functional brain damage and could be experiencing “behavioral dysregulation: short fuse, irritability, [and] can’t suppress impulses the way you normally could.”

With these emotional problems, “they would be more prone to perhaps do something impulsive, like commit suicide,” Cantu, medical director of the Concussion Legacy Foundation, told CNN.

A second theory, Cantu noted, is that post-concussive symptoms prevent people from getting back into their sport and stop them “from being the person that they were before their injury.”

Neither theory is proven to the exclusion of the other, Cantu said, adding he thinks increased suicidality was “a combined factor involving both in many, if not most cases.”

There are also differences in the way brain injuries affect women.

A study of female soccer players across US high schools found they are nearly twice as likely to suffer concussion as their male counterparts, according to research that looked at over 80,000 adolescent athletes, published in the journal JAMA Network Open.

Women remain significantly underrepresented within sport and exercise science research: a 2021 study examining papers from some of the most influential sports medical journals found that only 6{515baef3fee8ea94d67a98a2b336e0215adf67d225b0e21a4f5c9b13e8fbd502} of the studies were solely focused on women, compared with 31{515baef3fee8ea94d67a98a2b336e0215adf67d225b0e21a4f5c9b13e8fbd502} of studies that included just men.

Other researchers have pointed to female sex hormones, with risk of concussion changing with hormone levels during a menstrual cycle.

McKee said all athletes can also experience “non-concussive” injuries: “hits to the head that can be of the same magnitude as concussion, but they don’t rise to the level of symptoms for whatever reason, so a player tends to play right through it.”

Cumulative exposure to repetitive head impacts – including concussion and non- concussive injuries – increases the risk for the neurodegenerative brain disease chronic traumatic encephalopathy, known as CTE, McKee said.

The disease, which can only be formally diagnosed with an autopsy, has mostly been seen in either veterans or people who played contact sports, particularly American football, say researchers. The disease occurs when the brain starts to degenerate likely due to repeated head traumas, according to the Mayo Clinic, which notes CTE is “associated with recurrent concussions.”

But scientists aren’t only concerned about concussions.

Previous studies have shown subconcussive head impacts – repetitive hits to the head and body that do not cause symptoms – can still result in long-term neurological disease.

According to The Concussion Legacy Foundation, “the best available evidence suggests that subconcussive impacts, not concussions, are the driving force behind CTE.”

There have been cases of CTE discovered in athletes who have never been diagnosed with a concussion, according to the Concussion Legacy Foundation.

And other changes in the brain after repetitive head impacts aside from CTE are likely “equally important,” McKee said.

“We also see damage to the white matter. And that appears to be mostly in the frontal lobe, but also in the temporal lobes,” she said.

“We’re trying to understand the relationship of those white matter changes to behavioral and mood symptoms, perhaps even suicidality,” she said.

McKee stressed that concussion management is important, but physicians and athletes should also be aware of other injuries.

“The problem is the subclinical hits – the non-concussive injuries that aren’t detected, you don’t pull the player off the field – and they can be in the hundreds or even the 1000s in a single season,” she explained.

Though a growing body of data suggests women in sport are more likely to sustain a concussion, have more severe symptoms, and to take longer to recover, most sports-related concussions protocols are based on data from men.

In a review in the British Journal of Sports Medicine, researchers looked at 171 concussion studies written since 1967 which are used to inform the most influential consensus and position statements in treating sports-related concussions.

Clinicians rely on these documents to guide their medical practice when treating athletes – but most of the studies are focused on men. Only 1{515baef3fee8ea94d67a98a2b336e0215adf67d225b0e21a4f5c9b13e8fbd502} of them was looking exclusively at concussions in women and 40{515baef3fee8ea94d67a98a2b336e0215adf67d225b0e21a4f5c9b13e8fbd502} of them didn’t have any women in a sample of participants at all.

There is another risk factor for women in sport when they sustain head injuries, Katherine Snedaker, founder and executive director of PINK Concussions, a non-profit dedicated to women’s health and brain injury, told CNN.

There is a gulf of millions of dollars separating women and men when it comes to average annual salaries in most professional sports.

Outside of elite sport, Snedaker says, female athletes often don’t have access to the same medical care as men, meaning head injuries aren’t spotted as routinely.

“They tend to push really hard through the injury,” she said.

And many women can’t afford to take time out to recover: even professional athletes will supplement their sports income with other jobs, she added, and many are caregivers.

“When they really crater, it’s a couple of days or weeks later.”

Snedaker said female athletes often weren’t aware they had suffered a head injury.

If they were, she said, there were no appropriate medical or sporting staff to inform.

The families of Catlin and Soutter feel the young women didn’t get enough support after their injuries.

After Catlin’s first suicide attempt, she was released from an involuntary admission to the psychiatric ward after threatening legal action, and a conference between psychiatrists, her coach and her parents.

She attended therapy sessions, which she agreed to attend during the conference, but found “they were geared toward suicidal freshman with a whole set of different issues than an elite Olympic athlete,” her father told CNN.

She got a referral to a sports psychologist that worked with the Stanford athletic department, but the department forbade the psychologist from seeing Catlin because she was not a varsity athlete, her father added.

Kelly, along with her siblings Colin and Christine, pictured as a child on a bike ride in Minneapolis. Cycling was a passion from an early age, according to her father.

She contacted the office of a sports psychologist with whom she had developed a rapport while in the hospital – but, his appointment secretary said he had no openings for six months, her father told CNN.

“Wherever she turned she could not find help,” he said, adding that his daughter tried a suicide hotline several times: she was once put on hold and once received no answer.

Catlin described his daughter as a “stoic, female warrior type person that isn’t going to admit that she’s struggling.”

“She needed a sports psychiatrist that really could understand what she was going through and understand the rigors of her life in terms of preparation for competitions and the athletic side of it and what it could potentially do to you.”

Her father said a major factor in his daughter’s death was “a lack of communication between the facilities that were involved in Kelly’s care. No one was in charge and they assumed the other institutions were following up when they weren’t,” he added.

In a statement sent to CNN, Luisa Rapport, director of emergency communications and media relations at Stanford University did not address any of the specific allegations made by Catlin’s family. She said while the university does not discuss in the media the details of individual students’ experiences, “supporting the mental and emotional health of students is a critical priority for Stanford.”

“Students in need of mental health crisis assistance – including students having suicidal thoughts – and those who are concerned about students in need of assistance, can contact the University’s Counseling and Psychological Services (CAPS) 24 hours-a-day, seven days-a-week,” she added.

Rapport said that in addition to this, “there are multiple places where psychological services may be provided for students depending on individualized need and treatment recommendations, including, for example, affiliated hospital services and clinics through Stanford’s Department of Psychiatry and Behavioral Sciences, and mental health programs and clinicians in the community.”

In a statement sent to CNN, USA Cycling said it was “devastated” by Catlin’s death, adding: “She brought focus and determination to everything she did, and served as an inspiration to everyone who knew her.

“As the National Governing Body for the sport of cycling, USA Cycling prioritizes the holistic wellbeing of the riders on the U.S. National Team and has a longstanding commitment to providing both physical and mental health resources to members of the team,” a representative for USA Cycling added.

Tony Soutter and his daughter, Ellie.

After his daughter Ellie’s death, Soutter was contacted by the UNITE Brain Bank, who wanted to study her brain as part of their research into CTE.

But even in that facility – the biggest of its kind in the world – of some 1,300 brains, only 3{515baef3fee8ea94d67a98a2b336e0215adf67d225b0e21a4f5c9b13e8fbd502} belonged to women, Ann McKee, Director of the Boston University Chronic Traumatic Encephalopathy (CTE) Center told CNN.

“When I actually started looking into CTE – all of the work that they’ve done with the footballers in America, she had every single symptom and more,” Soutter told CNN.

“It was quite obvious to me that there was a definite link in her starting to get into dark places and feeling bad and anxious and not sleeping properly. All of those symptoms … Every one that’s involved in CTE was part of Ellie’s life,” he added.

“I truly believe today that my daughter would be alive had I had any inkling, you know, even the smallest bit of information.”

Editor’s Note: If you are in the US and you or a loved one have contemplated suicide, call The National Suicide and Crisis Lifeline at 988 or 1-800-273-TALK (8255) to connect with a trained counselor.

For support outside of the US, a worldwide directory of resources and international hotlines is provided by the International Association for Suicide Prevention. You can also turn to Befrienders Worldwide.

Correction: A previous version of this story incorrectly stated the number of brains held at the Unite Brain Bank. It has now been updated.

Goldman Sachs makes a bold housing market call

Goldman Sachs makes a bold housing market call

The U.S. housing market could possibly finally be nearing the bottom. At minimum that is in accordance to Goldman Sachs.

Just two weeks after Goldman Sachs downgraded its outlook for the U.S. housing industry in a paper titled Obtaining Even worse Ahead of Getting Better, the financial investment lender reversed study course on Jan. 23 in a paper titled 2023 Housing Outlook: Discovering a Trough.

Instead of U.S. house charges slipping 6.1{515baef3fee8ea94d67a98a2b336e0215adf67d225b0e21a4f5c9b13e8fbd502} in 2023, which was their Jan. 10 prediction, researchers at the investment lender now expect nationwide home selling prices to conclude 2023 down just 2.6{515baef3fee8ea94d67a98a2b336e0215adf67d225b0e21a4f5c9b13e8fbd502}.

By the time U.S. property price ranges base out this summertime, Goldman Sachs suggests, national home costs will be down about 6{515baef3fee8ea94d67a98a2b336e0215adf67d225b0e21a4f5c9b13e8fbd502} from its June 2022 peak. Formerly, Goldman Sachs scientists have been anticipating that peak-to-trough decline to arrive in closer to 10{515baef3fee8ea94d67a98a2b336e0215adf67d225b0e21a4f5c9b13e8fbd502}.

“We assume a peak-to-trough decline in countrywide home prices of approximately 6{515baef3fee8ea94d67a98a2b336e0215adf67d225b0e21a4f5c9b13e8fbd502} and for rates to prevent declining all over midyear. On a regional basis, we project much larger declines across the Pacific Coast and Southwest regions—which have noticed the biggest raises in inventory on average—and more modest declines throughout the Mid-Atlantic and Midwest—which have taken care of increased affordability about the earlier pair years,” wrote the researchers.

Why the upward revision? Modern info, Goldman Sachs suggests, factors to an uptick in homebuyer demand from customers.

“Home sales surface set to change bigger. Home loan buy purposes have averaged 9{515baef3fee8ea94d67a98a2b336e0215adf67d225b0e21a4f5c9b13e8fbd502} higher than their October trough so considerably in January, and survey-primarily based steps of purchasing intentions have rebounded sharply,” wrote Goldman Sachs scientists.

To get a far better thought of where by both of those national and regional household charges could be headed, Fortune requested Goldman Sachs to give us with its full forecast.

Let us consider a glimpse.

As opposed to KPMG, Goldman Sachs does not be expecting a double-digit residence selling price correction. The investment lender suggests there are three explanations why a steeper correction won’t take place this cycle.

“Very first, the speedy buildup of untapped house fairness around the past pair several years suggests that even if price ranges declined extra sharply than we count on, only a little share of home loan debtors would be underwater,” wrote Goldman Sachs researchers. “2nd, in excess of 90{515baef3fee8ea94d67a98a2b336e0215adf67d225b0e21a4f5c9b13e8fbd502} of remarkable home loans are set level, meaning that the increase in interest charges will not direct to a spike in personal debt provider expenditures for most house owners. And third, house equilibrium sheets continue being strong, with low combination leverage and sizeable remaining pent-up savings from the COVID-19 pandemic.”

All those a few components, Goldman Sachs states, need to protect against the prospective “for the cascading defaults that contributed to the post-GFC drawdown.” That previous correction—after the 2007–2008 World Economic Disaster (GFC), which saw U.S. house price ranges slide 26{515baef3fee8ea94d67a98a2b336e0215adf67d225b0e21a4f5c9b13e8fbd502} among 2007 and 2012—is four occasions increased than the 6{515baef3fee8ea94d67a98a2b336e0215adf67d225b0e21a4f5c9b13e8fbd502} peak-to-trough decline Goldman Sachs is predicting this time about.

Whilst Goldman Sachs expects nationwide dwelling costs to tumble 2.6{515baef3fee8ea94d67a98a2b336e0215adf67d225b0e21a4f5c9b13e8fbd502} in 2023, not each and every market place will be so fortunate.

In 2023, Goldman Sachs expects double-digit household selling price declines only in overheated markets like Austin (-16{515baef3fee8ea94d67a98a2b336e0215adf67d225b0e21a4f5c9b13e8fbd502}), San Francisco (-14{515baef3fee8ea94d67a98a2b336e0215adf67d225b0e21a4f5c9b13e8fbd502}), San Diego (-13{515baef3fee8ea94d67a98a2b336e0215adf67d225b0e21a4f5c9b13e8fbd502}), Phoenix (-13{515baef3fee8ea94d67a98a2b336e0215adf67d225b0e21a4f5c9b13e8fbd502}), Denver (-11{515baef3fee8ea94d67a98a2b336e0215adf67d225b0e21a4f5c9b13e8fbd502}), Seattle (-11{515baef3fee8ea94d67a98a2b336e0215adf67d225b0e21a4f5c9b13e8fbd502}), Tampa (-11{515baef3fee8ea94d67a98a2b336e0215adf67d225b0e21a4f5c9b13e8fbd502}), and Las Vegas (-11{515baef3fee8ea94d67a98a2b336e0215adf67d225b0e21a4f5c9b13e8fbd502}). On the beneficial side, Goldman Sachs expects household charges will rise in marketplaces like Baltimore (+.5{515baef3fee8ea94d67a98a2b336e0215adf67d225b0e21a4f5c9b13e8fbd502}) and Miami (+.8{515baef3fee8ea94d67a98a2b336e0215adf67d225b0e21a4f5c9b13e8fbd502}).

“Metro-amount trends will be dictated by a tug-of-war concerning housing need and source. MSAs [metros] with much better affordability like Chicago and Philadelphia—for which payments on new mortgages only price tag roughly a quarter of month to month income—should see scaled-down home value declines than metros with weak affordability like lots of towns in the West—some of which are seeing home finance loan payments claim three-quarters of monthly income,” wrote Goldman Sachs scientists in their most recent be aware.

On the mortgage loan amount front, Goldman Sachs states potential buyers should not anticipate considerably reduction. By the conclude of 2023, the financial commitment lender expects the common 30-year preset mortgage charge will tick back up to 6.5{515baef3fee8ea94d67a98a2b336e0215adf67d225b0e21a4f5c9b13e8fbd502}. As of Thursday, the average 30-yr fastened mortgage level sits at 6.09{515baef3fee8ea94d67a98a2b336e0215adf67d225b0e21a4f5c9b13e8fbd502}.

Newsletter-Gold-Line

On the lookout for more housing predictions? Observe me on Twitter at @NewsLambert.

Find out how to navigate and reinforce have confidence in in your organization with The Have confidence in Variable, a weekly publication analyzing what leaders need to have to thrive. Signal up right here.

What to know about education savings accounts, the school choice measure making waves in states

What to know about education savings accounts, the school choice measure making waves in states

Amid the countrywide debate about school selection, advocates are viewing increasing results with arrangements known as education cost savings accounts (ESAs), with legislation currently released or passed in multiple states this 12 months.

ESAs, derided as vouchers by their opponents, are condition-funded accounts for moms and dads who are looking for different instruction options for small children aside from their community public faculty. The government will set a sure amount of money in the account just about every yr to help college students fork out for educational expenditures this kind of as personal school tuition, homeschooling and personal tutors.

Quantities for the taxpayer-funded accounts are distinctive in each condition. For Arizona, which passed the to start with universal ESA legislation very last calendar year, pupils get up to $7,000 in their ESAs.

“This is a monumental moment for all of Arizona’s college students. Our children will no lengthier be locked in beneath-undertaking schools. These days, we’re unlocking a entire new planet of option for them and their mom and dad,” then-Arizona Gov. Doug Ducey (R) reported when he signed the ESA legislation into law last 12 months.

Far more than 15 states this year have proposed ESA bills, according to a tracker by school-decision advocacy team EFI Institute. Amongst people, Iowa and Utah are the 1st to get their laws signed into regulation.

Here’s what you will need to know:

Unique states, different regulations

ESAs all have the exact simple framework: The governing administration puts cash into an account for a college student that moms and dads are then ready to use for education and learning outside the house the general public university program.

However, even among the the somewhat several states so much that have ESAs, there are distinctive skills and benchmarks. 

Mississippi, for illustration, delivers ESA accounts of all around $6,800 only for particular desires pupils as a result of its Equivalent Option for Pupils with Special Desires System.

In New Hampshire, an ESA set up called the Instruction Liberty Account Application makes it possible for those in small- and middle-cash flow homes to open up accounts. 

The ESA motion picked up a ton of steam final yr with Arizona starting to be the initial state to offer you universal accounts with no restrictions. Mothers and fathers can sign up and receive a particular amount of funds to take their small children out of public college and spend in homeschooling, on the web education and personal faculty tuition. 

That application has develop into the conventional that university choice advocates argue other states have to have to emulate. 

Last thirty day period, a wave of ESA laws was introduced throughout the state.

Jonathan Butcher, the Will Skillman Fellow in Instruction at the conservative Heritage Basis, reported Utah and Iowa’s plans, the very first accredited this calendar year, are more properly determined as “account-style” programs.

In a standard-design ESA account, parents are in a position to help you save revenue from year to yr. When their baby is in middle college, they may possibly decide to preserve more being aware of significant faculty will be additional high priced. 

In Utah, $42 million was allotted to the ESA system, with any one able to apply but precedence given to small-revenue people. The funds, nevertheless, does not roll more than 12 months right after yr.

In Iowa, the income in an ESA account, which will be all around $7,500, has to go to personal faculty or linked costs — not homeschooling or other educational selections.  

“I imagine both Utah and Iowa are outstanding courses. It’s quite interesting to see these become a truth for students,” Butcher said. “I would just say they’re account-fashion, proper? I think the most good detail, the most helpful issue about these individual programs is that they are common.”

He added that in Arizona mother and father have the independence to preserve and commit the dollars much more commonly. Though parents however need to just take their young children out of community college to access the money, they can use it for specific “public university providers.”

“So you can use the account and say, ‘Hey, glimpse, I’d enjoy for my child to choose Spanish at this local science school since they have a great Spanish application,’ or ‘I’d really like for them to be in a position to participate in you the soccer crew or band or no matter what.’ And so they’ll use the account to spend for that contracted services,” Butcher reported.

At the very least 10 other states have some form of ESA laws in advance of them, from growing ESA eligibility in Florida to making brand new applications in Washington.  

ESAs are mainly a partisan difficulty

Republicans, who are far more supportive of faculty choice and skeptical of general public universities in basic, are unsurprisingly also the most important backers of ESAs.

Democrats, on the other hand, raise a number of problems, as do teachers’ unions. They say ESAs are simply school vouchers by one more title.

A person of their objections is that general public taxpayer revenue is utilised to fund men and women going to personal schools, the place the institutions can decide and select who receives recognized. 

“Children who are exclusive desires, who may perhaps have psychological overall health concerns, who could have actual physical disabilities or whose mothers and fathers don’t fulfill the standards of the spiritual institution can be denied admittance to that personal faculty,” Iowa Point out Education Association President Mike Beranek said. 

“And so which is pretty hard to realize why these private establishments who will be receiving public pounds do not have the identical demands as a general public college,” he included. 

An additional issue raised — a person that has provided Republican states such as Texas problems in applying ESAs — is rural citizens.

“In quite a few of our rural regions listed here in the point out, there is not accessibility to a personal establishment. So, in authentic terms, in observe, individuals who are in our rural communities will be subsidizing moms and dads who reside in larger sized spots, larger city spots, suburban places that have a greater frequency of non-public establishments,” Beranek stated. 

Potentially the biggest fears raised by opponents of ESAs is they acquire absent dollars from general public educational facilities and there isn’t more than enough transparency on how the dollars is made use of. 

“My main situation becoming as a classroom trainer and a father or mother is that it does immediately defund our regional public educational institutions,” stated Beth Lewis, director of Help save Our Schools in Arizona.

“A next motive why the ESA voucher is a issue is that there is no transparency or accountability, and that’s baked in by design. So we have no idea how taxpayer bucks are staying applied, what sort of curriculum is being taught, regardless of whether benchmarks are getting satisfied, whether academics have fingerprint, background checks, or qualifications,” Lewis added.

The drive has developed because the pandemic

Parental preference in education and learning has develop into increasingly well known considering the fact that the commencing of the coronavirus pandemic, as homeschooling and non-public university enrollment rose due to a myriad of elements, these as school closings and mask mandates.

“Following the COVID remote education and all this disruption to schooling that occurred through the additional energetic time period of the COVID pandemic than what we’re in now, it acquired form of a good deal of parents agitated, and I feel produced a small little bit of a political motion all over parental choice in educational institutions,” reported Sarah Reber, Joseph A. Pechman Senior Fellow and previous David M. Rubenstein Fellow in Economics Experiments at Brookings Institution.

Republicans have seized on discontent with the community faculty program, fueling ESA legislation in numerous states.

Advocates for ESAs argue this helps receives college students out of public educational institutions, specifically ones that are failing or mom and dad do not truly feel align with their values or ambitions for their boy or girl, a message that advocates say resonates with mothers and fathers extra since the pandemic.

Post-Zero Covid Travel News You Might Have Missed, Feb 6

Post-Zero Covid Travel News You Might Have Missed, Feb 6

St. Petersburg to Resume Immediate Flights to Beijing: Following just about 3 a long time, the Russian town of St. Petersburg is established to resume direct flights to China’s capital on Feb 19, in accordance to Television set BRICS.

The flights will be carried out by Hainan Airlines, who will operate the flights making use of an Airbus A330-300 plane. Gurus think St. Petersburg can count on 300,000 vacationers from China this yr, with a restoration of vacationer circulation to pre-Covid concentrations not envisioned right before 2024.

Thai Airways Prepares to Relaunch Crucial China Routes: Thai Airways is anticipated to relaunch essential routes to China soon, such as to Beijing and Shanghai, stories Aviation Supply.

Flights from Bangkok to Beijing will re-begin on Mar 1, with only a few flights for each 7 days, departing from Bangkok Suvarnabhumi at 10.10am, arriving in Beijing at 3.50pm. Flights again to Thailand will depart Beijing at 5.05pm and get there in Bangkok at 9.15pm.

Nations With Covid Tests Rules for Arrivals from China: As of press time, 20 countries now have Covid screening requirements or vacation limitations in location for air travelers coming from China.

South Korea – Evidence of unfavorable PCR test outcome from check taken inside of 48 hrs, or evidence of damaging antigen self-test outcome from check taken inside 24 several hours prior to departure. This involves passengers traveling to South Korea from other countries who have beforehand been in China 7 times prior to their flight. All travellers must undergo yet another PCR examination soon after arriving in the state.
(Source: https://abroad.mofa.go.kr/cn-zh/brd/m_21043/see.do?seq=87#)

Canada – Proof of damaging PCR or antigen self-exam consequence from examination taken two days prior to departure.
(Supply: https://vacation.gc.ca/journey-covid/journey-constraints/covid-19-pre-boarding-check-prerequisites-china-hong-kong-macao)

Australia – Proof of destructive PCR test consequence from exam taken 48 several hours prior to departure.
(Resource: https://www.homeaffairs.gov.au/covid19/)

France – Evidence of detrimental PCR take a look at result from take a look at taken 48 hrs prior to departure.
(Resource: https://solidarites-sante.gouv.fr/actualites/actualites-du-ministere/article/mise-en-put-de-mesures-sanitaires-pour-les-passagers-en-provenance-de-chine)

Qatar – Evidence of detrimental PCR exam final result from take a look at taken in just 48 several hours prior to departure for arrivals from Chinese mainland.
(Resource: https://covid19.moph.gov.qa/EN/journey-and-return-coverage/Web pages/default.aspx)

Usa – Evidence of detrimental PCR exam final result with two calendar days’ validity or evidence of recovery from Covid.*
(Source: https://www.cdc.gov/coronavirus/2019-ncov/travelers/tests-global-air-tourists.html)

United kingdom – Evidence of damaging PCR examination end result from take a look at taken inside of two calendar days right before departure for arrivals from Chinese mainland (immediate or indirect flights).** (Resource: https://www.gov.uk/assistance/vacation-to-england-from-another-country-during-coronavirus-covid-19#vacation-from-mainland-china)

India – Proof of damaging PCR take a look at end result from check taken within just 72 hrs of departure for arrivals from Chinese mainland and Hong Kong SAR. (Resource: https://www.mohfw.gov.in/)

Italy – Proof of negative PCR examination end result from check taken in 48 several hours of departure or destructive antigen examination final result from within just 48 several hours before departure for arrivals from Chinese mainland.
(Supply: https://www.esteri.it/en/ministero/normativaonline/focus-cittadini-italiani-in-rientro-dall-estero-e-cittadini-stranieri-in-italia/)

Israel – Proof of damaging PCR take a look at end result from exam taken inside of 72 hours of departure for non-Israelis, including individuals who have been to China 7 times prior to departure.
(Supply: https://corona.health.gov.il/en/overseas/arriving-by-air/)

Spain – Proof of total vaccination (two shots) in opposition to Covid, or negative PCR take a look at outcome from test taken in 72 several hours prior to departure, or adverse antigen examination outcome from take a look at taken in 24 hrs prior to departure.
(Resource: https://www.sanidad.gob.es/en/profesionales/saludPublica/ccayes/alertasActual/nCov/spth.htm)

Japan – Testing all arrivals from Chinese mainland on arrival in addition evidence of unfavorable PCR check final result from exam taken in just 72 hrs of departure.
(Source: https://www.mofa.go.jp/ca/fna/web page4e_001053.html)

Morocco – All arrivals from the Chinese mainland, no matter of nationality, are banned from getting into the state.
(Resource: https://www3.nhk.or.jp/nhkworld/en/news/20230102_08/)

Netherlands – Evidence of damaging PCR or antigen take a look at result inside of 48 hrs of departure for airline passengers aged 11 and up.
(Supply: https://www.governing administration.nl/subject areas/coronavirus-covid-19/going to-the-netherlands-from-abroad)

Sweden – Evidence of negative PCR exam result inside of 48 several hours of entry into the country.
(Supply: https://www.folkhalsomyndigheten.se/the-community-health and fitness-company-of-sweden/communicable-disorder-regulate/covid-19/tips-for-people-travelling/)

Cyprus – Evidence of negative PCR or other NAT result within just 48 several hours of departure.
(Source: https://www.usnews.com/news/earth/articles/2023-01-11/cyprus-requires-adverse-covid-checks-for-china-arrivals)

Germany – Evidence of detrimental PCR, antigen or other NAT end result taken inside 48 hrs of departure.
(Resource: https://www.bundesgesundheitsministerium.de/service/gesetze-und-verordnungen/guv-19-lp/coronaeinreisev.html)

Austria – Proof of unfavorable PCR take a look at final result taken inside 48 hours of departure.
(Source: https://www.austria.facts/en/services-and-specifics/coronavirus-information/entry-regulations)

Greece – Evidence of detrimental PCR examination final result taken in just 48 several hours of departure or unfavorable antigen consequence taken within just 24 hours of departure.
(Supply: https://travel.gov.gr/#/)

Portugal – Evidence of damaging PCR exam consequence taken inside 48 several hours of departure moreover random screening for arrivals from China.
(Resource: https://www.visitportugal.com/en/content/covid-19-actions-executed-portugal)

Unless of course stated in any other case, all the over nations around the world need negative check success from arrivals coming from the Chinese mainland, Hong Kong SAR, and Macao SAR.

*Specifications pertain to these moving into the US through Incheon Global Airport (Seoul, South Korea), Toronto International Airport, and Vancouver Worldwide Airport (both equally in Canada), who have been to the Chinese mainland, Hong Kong SAR, or Macao SAR in 10 times right before their flight.

**Excludes Scotland, Wales, and Northern Eire.

Go through: Article-Zero Covid Travel News You May well Have Skipped, Jan 16

Images: Unsplash

2023 Grammys fashion: See the best looks

2023 Grammys fashion: See the best looks

By LEANNE ITALIE

February 6, 2023 GMT

NEW YORK (AP) — Lizzo wowed in a bright orange Dolce & Gabbana opera coat adorned with flowers and a massive hood as the wild and wacky Grammys pink carpet did not disappoint Sunday. Tattered streetwear, T-shirts and denim mixed with blinged-out couture, wild patterns and a good deal of pores and skin.

Lizzo walked gingerly as she navigated her heavy coat with a prolonged educate. Soon after awhile, she dropped the coat to her shoulders to reveal a busty sequin corset robe beneath in a softer orange. The coat was totally embroidered with handmade silk bouquets, and the robe was silk with crystal mesh Swarovski details. She accessorized with crystal embellished heels and sheer fingerless gloves.

“Lizzo is a floral yard fantasy in her ruffle orange 3D gown and matching corset gown beneath,” explained Holly Katz, a stylist and host of the Trend Crimes podcast. “And we appreciate to hear her roar!”

Taylor Swift, channeling her Midnights era, wore a extended two-piece sparkly skirt with a higher-neck, very long-sleeve crop top rated, all by Roberto Cavalli. They ended up, certainly, midnight blue. She included statement diamond earrings by Lorraine Schwartz, her hair in an updo.

Trend lover Harry Kinds walked the carpet in a rainbow harlequin sample jumpsuit adorned with Swarovski crystals. He was shirtless beneath. His small-slash, multicolored Egonlab seem drew cheers. Egonlab is a young model out of Paris.

“The man appears to be like he’s owning an monumental amount of fun with style, and even if that does not imply donning harlequin overalls for most of us, the stop end result — the sheer joy of it — is a thing we should really all intention for,” reported Esquire’s design director, Jonathan Evans.

Cardi B., meanwhile, wore a bombshell, sculptural electric powered blue robe with massive shoulders and a headpiece about one eye.

“I’m making an attempt, I’m striving,” she informed photographers as she carefully walked down the carpet.

Cardi’s glance was from Gaurav Gupta’s latest assortment, “continuing to establish she intrinsically understands the fragile model dynamics of the Grammys carpet. It is not about getting foolish, but instead producing a assertion,” explained Bianca Betancourt, electronic culture editor for Harper’s Bazaar.

To existing the award for best rap album, Cardi donned a silver metallic assemblage from the archive of Paco Rabanne. Rabanne died Friday in France at age 88. The prime and skirt had been done by Julien Dossena in 2021. The matching hood that lined her eyes dates to 2020.

Anitta also manufactured a splash in black Versace from 2003.

“She went towards a far more gothic aesthetic,” Betancourt claimed. “The flowing gown was sublimely personalized and confirmed the world-wide star carrying out red carpet magnificence in her individual way. It was however alluring, continue to youthful, but however elevated. It did not glimpse of course vintage, which is a testament to Donatella’s artistry.”

Machine Gun Kelly, who frequently pushes into edgy manner, was in a silver double-breasted laminated foil go well with with a Swarovski crystal harness. It was custom Dolce & Gabbana. He was accompanied by Megan Fox in creamy Zuhair Murad. Her gown experienced a corset bodice and heart embroidered applique.

Sam Smith was in fireplace engine red. They were being accompanied by Kim Petras, and drag queens Violet Chachki and Gottmik in the exact same coloration. Smith wore a major hat with a veil. They, way too, wore matching gloves, a development of the night time.

Monochrome was a key theme, Betancourt said.

“It’s a wonderful way to experiment with more avant-garde appears to be like though even now keeping a sense of stylistic framework,” she said. “Lizzo and Kacey Musgraves also opted for monochrome and textured appears to be from Dolce & Gabbana and Valentino.”

The marathon carpet kicked off with some notable appears to be. Doja Cat, always pushing her trend envelope, showed up in a vinyl, a person-shoulder and skintight black gown with extensive matching gloves from Atelier Versace. Bebe Rexha sizzled in hot pink with twists from head to toe and a va-va-voom halter bodice, proving that Barbiecore is heading robust. The glimpse was Moschino by Jeremy Scott.

Musgraves, in Valentino, also took the Barbie take note with a feathery cape in a lighter pink hue around a catsuit.

There ended up golden crowns (Matt B), glittery mouth bling (Alligator Jesus) and epic tattoos (Alisha Gaddis). And heaps of slouchy and roomy looks that spoke to a lot of of the adult men, as did an embroidered denim shorts ensemble for Benny Blanco.

“While there weren’t any large, unmissable, overwhelmingly popular pink-carpet tendencies on the men’s style entrance, that basically proved to be a positive this calendar year. It gave the scaled-down tendencies a minimal bit much more space to shine,” Evans mentioned.

His most powerful? The double-breasted go well with, or jacket.

“It’s not just a 2023 detail, of program, but the level of popularity of the DB tends to ebb and movement, and it would seem like this calendar year could be a really superior a person for the silhouette. LL Cool J, Jack Harlow, Saint JHN and Scott Evans all wore a variation of it. They all seemed great, and the truly fantastic issue is that adult males in all walks of everyday living can emulate their outfits and search equally great,” he explained.

Evans also had views on all that denim.

“Miguel was decked out in it. Benny Blanco, too. The looks ended up seemingly created with the term ‘divisive’ in mind, but they smacked of a sort of youth-lifestyle cool that embraces that term alternatively of shying absent from it. Adore ’em or despise ’em, those outfits seem to be like a bellwether of a far more denim-ahead planet in the in the vicinity of future, so consider take note,” he reported.

But back again to Doja Cat’s vinyl.

“Who just can’t cease chatting about Doja Cat donning 30,000 red Swarovski crystals for Paris Vogue Week? Perfectly, she definitely does not disappoint at the Grammys as she thoroughly channeled the queen of darkness,” Katz explained. “The Mia Farrow 60′s haircut was a perfect match for this search.”

Betancourt was also a Doja admirer.

“The look was gritty, captivating and significantly like Doja herself, forward-imagining. Her makeup also justifies a noteworthy point out. It was an exquisite cat eye (pun intended) by Ernesto Casillas with a juicy metallic glossed lip that echoed the early aughts, but performed devoid of the kitsch most 2000s-impressed appears typically perpetuate,” she said.

Viola Davis, meanwhile, finished her EGOT by winning a Grammy at the Grammys pre-telecast ceremony in a Naeem Kahn crimson, silver and blue tiered sequin short-sleeved robe.

Shania Twain isn’t up for a Grammy. That, she claimed, freed her to have fun with vogue. Twain’s hair was purple and her Harris Reed large-belled pantsuit was adorned with big black polka dots in opposition to white. She topped it off with a towering, matching extensive-brim hat.

“Here I am with all my new pleasurable issues to dress in,” she mentioned. Reed is a younger British American designer she needed to support. Her aim: “I just required to insert some pop and cheer.”

Twain, stated Katz, “definitely scored in the avant-garde classification but does form of seem like she just stepped out of Alice in Wonderland.”

Laverne Cox WAS “Wakanda Forever” in her customized strapless leather Kim Kassas embellished warrior figure gown and African-influenced jewellery, Katz said. “Paying homage to the African lifestyle by way of fashion is often in style.”

Cox’s leather gown by Kim Kassas honors the eyesight of the late manner editor Andre Leon Talley. There was an additional vibe on her head: “Egyptian/Cleopatra.”

Prabal Gurung whipped up a tailor made sunny yellow chiffon glance for Kelsea Ballerini with light-as-air back pieces she unfurled on the carpet. Amanda Gorman was in a prime shade of the night time: black. Gorman, sporting Prada, twirled her prolonged, sheer overlay worn above a mini-gown on the pink carpet.

Ballerini’s search, Katz claimed, was “so ethereal and dreamy on the purple carpet.”

___

Obtain Leanne Italie on Twitter at http://twitter.com/litalie

___

Involved Press host and video clip producer Gary G. Hamilton contributed to this tale.

Long COVID diagnosis puts extra strain on family caregivers : Shots

Long COVID diagnosis puts extra strain on family caregivers : Shots

Louise Salant (right), 72, and her aunt Eileen Salant (center), 86, both got very sick with COVID-19 in 2020. And as Eileen developed long COVID symptoms, so too did Louise, who struggled with fatigue and shortness of breath while also managing her aunt’s care. Nearly three years later, home health aides like Elfnesh Legesse (left) help Louise take care of her aunt.

Gabriela Bhaskar for NPR


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Gabriela Bhaskar for NPR


Louise Salant (right), 72, and her aunt Eileen Salant (center), 86, both got very sick with COVID-19 in 2020. And as Eileen developed long COVID symptoms, so too did Louise, who struggled with fatigue and shortness of breath while also managing her aunt’s care. Nearly three years later, home health aides like Elfnesh Legesse (left) help Louise take care of her aunt.

Gabriela Bhaskar for NPR

For Louise Salant, long COVID has meant new stress, new responsibilities, and multiple medical crises to manage. It’s transformed her life.

But there’s a twist. She’s had to deal with this condition not just as a patient but also as a caregiver for her 86-year-old aunt Eileen Salant, who has coped with long COVID’s disabling symptoms for almost three years.

Eileen and Louise both caught an acute bout of COVID-19 in March of 2020. Eileen had been taking care of her brother, who was admitted to a New York City hospital with heart failure during those dark days of the early pandemic. He got COVID there, and died from his infection with the virus. Both aunt and niece also became very ill.

It was early days of the pandemic in New York, and hospitals were so crowded that Louise was told to stay home and fight out the illness on her own. Meanwhile, Eileen was hospitalized and stayed there all spring, including two months on a ventilator. After that, she spent five months at a rehab hospital. She finally came home to her apartment in Riverdale, the Bronx, the day before Thanksgiving in 2020 — but she was very weak.

Eileen and Louise both got COVID-19 in the early days of the pandemic in New York. Eileen ended up on a ventilator for two months and then spent five months in a rehab hospital. Louise fought the illness at home as hospitals started filling up.

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Gabriela Bhaskar for NPR


Eileen and Louise both got COVID-19 in the early days of the pandemic in New York. Eileen ended up on a ventilator for two months and then spent five months in a rehab hospital. Louise fought the illness at home as hospitals started filling up.

Gabriela Bhaskar for NPR

“She could barely sit up in bed, couldn’t hold a fork,” says Louise, who lives a 10-minute taxi ride away.

Over the years, Louise, now 72, has worked at various times as an art therapist, taught piano to children and adults and done medical interviewing for a cancer research team. But when COVID hit, all that ground to a halt. Though she hadn’t always been emotionally close to her aunt, she says, she took on the caregiving role, “because someone needed to” — even as she, too, dealt with her own symptoms of long COVID, including crushing fatigue and shortness of breath.

An overwhelming need

Louise Salant set about organizing home aides, occupational therapy and physical therapy for her aunt and oversaw all other aspects of the older woman’s care. She had to learn to deliver injections of blood thinning medicine, then trained the aides to do it too. For months, she kept track of Eileen’s expenses, maintained all her medical information and patient history, and ran all her errands.

She found that being a caregiver for someone with long COVID, as for other serious and chronic medical conditions, is not just being an aide. It’s running the patient’s life. “Every single day, there’s something she’d need,” Louise says. “I was dealing with the pharmacy, dealing with the doctor, keeping her schedule. And when I’m not there, I’d worry. I have to always be available on the phone.”

Louise began managing all aspects of her aunt’s life while dealing with her own debilitating fatigue. She hired and trained home health aides, made doctor’s appointments for Eileen, and picked up prescriptions from the pharmacy.

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Gabriela Bhaskar for NPR


Louise began managing all aspects of her aunt’s life while dealing with her own debilitating fatigue. She hired and trained home health aides, made doctor’s appointments for Eileen, and picked up prescriptions from the pharmacy.

Gabriela Bhaskar for NPR

Eileen recently got a new phone; Louise showed her how to use it.

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Eileen recently got a new phone; Louise showed her how to use it.

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Between 8 and 23 million Americans are thought to have long COVID — meaning they have long-lasting symptoms that endure or arise months after infection, such as difficulty concentrating (“brain fog”), extreme tiredness, anxiety and shortness of breath. But there is no solid estimate of how many need caregiving help. Stats from one clinic hint at the size of the problem: Out of the 1,782 patients seen at the Penn Medicine Post-COVID Assessment and Recovery Clinic between June 2020 and January 2023, about one-fifth said they felt uncomfortable dealing with daily activities like driving, shopping, or using public transit, suggesting the need for a caregiver.

And, like roughly 40{515baef3fee8ea94d67a98a2b336e0215adf67d225b0e21a4f5c9b13e8fbd502} of U.S. caregivers, Louise had her own chronic health problems to manage. It was the exhaustion of long COVID that almost took her under, especially in the first months of caregiving. After three or so hours of helping her aunt, she says, “this sickening feeling would come over my whole body, and I’d have to go home. I’d be in bed sick for two or three days.” In August 2021, Louise got a new inhaler from her lung doctor that helped her breathe better and started to give her more energy.

Why caregiving is harder when the medical condition is new and poorly understood

Stories like the Salants’ reveal another unfortunate reality about dealing with a complex chronic disease like long COVID, in contrast to an illness with a more straightforward diagnosis: Meeting the demands of the health care system itself can be a major burden. Because the medical condition is new and poorly understood, patients often consult multiple specialists who order a long sequence of tests to rule out other illnesses. Caregivers must schedule each of those visits, often go with the patient to the test, and often need to follow up with multiple physicians about the results.

Louise sorts through Eileen’s medications. “She’s been wonderful to me,” Eileen says of Louise. “Like a daughter would help her mother.”

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Gabriela Bhaskar for NPR

With unpredictable symptoms that can wax and wane mysteriously, long COVID also requires exceptionally good record-keeping, in order to provide doctors with new clues. But because the disease often causes fatigue and brain fog, some patients can’t keep track for themselves. They rely on friends or family for help.

“The family caregiver becomes the care manager, advocating and managing the system,” the late John Schall, former CEO of the Caregiver Action Network, an education and advocacy nonprofit, told us last year. “And you’re doing it by guesswork. Nobody tells you what to look for.”

In interviews with a half-dozen family caregivers of people with long COVID, the complexity of managing care emerged again and again. Judith Friedman, a Brooklyn mom who is helping her adult daughter who has long COVID, maintains a list of 14 doctors she consults regularly or periodically and another list that includes 10 daily prescription drugs, plus supplements and other as-needed medications her daughter takes.

Slowly, over time, Eileen began regaining her strength. By March 2022, she was able to venture out with Louise, for adventures beyond the neighborhood.

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Slowly, over time, Eileen began regaining her strength. By March 2022, she was able to venture out with Louise, for adventures beyond the neighborhood.

Gabriela Bhaskar for NPR

The task can be overwhelming even for experts. Tonya LaGrange has helped her husband Brent LaGrange since 2020 through a huge range of problems stemming from long COVID, including heart arrhythmias, joint pain, neurological problems and difficulty breathing. During doctors’ appointments, she is his advocate and backstop, making sure nothing gets forgotten and details don’t get lost. “It’s probably why he’s still alive now,” LaGrange says. “I’ve been able to intervene when he slips through the cracks.”

In 2020, at the peak of her husband’s illness, she was always doing something for his care, she says, whether it was emailing case managers during the day, or monitoring his breathing at night to wake him up when he would especially struggle. It’s not quite as intense now as it once was, she says, but she is still always “on” — juggling phone calls, appointments and follow-ups in between the demands of her job as the director of rehabilitation at a skilled nursing facility.

Even though LaGrange works in health care herself (including training as a physical therapist), and all her husband’s doctors are in one health system she finds care management a challenge. “I know how the field works, I know the system, I know the terminology, and we’re having trouble,” she says. “What about people who don’t have the education I have? It’s devastating.”

Caregivers need support, too

Louise says her own long COVID symptoms have finally mostly eased. She says she took on the caregiving role for her aunt when COVID-19 hit them both, “because someone needed to.”

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Louise says her own long COVID symptoms have finally mostly eased. She says she took on the caregiving role for her aunt when COVID-19 hit them both, “because someone needed to.”

Gabriela Bhaskar for NPR

About half of all family caregivers say they take the lead in coordinating their ill loved one’s care, according to surveys from AARP. And while hands-on caregiving can be emotionally rewarding, dealing with forms, bills and scheduling generally isn’t, says Jennifer Olsen, CEO of the Rosalynn Carter Institute for Caregivers. “It’s challenging to spend half your day on the phone with insurance to make sure you have the right justification for the right test,” she says. “Caregiving project management is something we don’t talk about.”

These responsibilities add to the strain of worrying about a loved one’s health and keeping the household running too. It can be intense, says Sheria Robinson-Lane, assistant professor at the University of Michigan School of Nursing, who studies caregiving. “One family member might have taken care of paying the bills, and now this person has to learn all those tasks, which wasn’t part of the division of labor,” she adds. “That causes stress.”

Louise rests on the couch while visiting Eileen at her apartment in the Bronx. Naps were a regular part of each caregiving day a couple of years ago, when Louise could only function about three hours a day, she says. A new inhaler she was prescribed in August 2021 helped her breathe better, and gave her more energy.

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Louise rests on the couch while visiting Eileen at her apartment in the Bronx. Naps were a regular part of each caregiving day a couple of years ago, when Louise could only function about three hours a day, she says. A new inhaler she was prescribed in August 2021 helped her breathe better, and gave her more energy.

Gabriela Bhaskar for NPR

Robinson-Lane recommends that caregivers move quickly to reinforce their own emotional support systems, whether that’s friends, family or, ideally, a professional counselor. Local senior centers can often help people who aren’t necessarily elderly, she adds: Advice and connections may be available for those over 55, or for disabled people of any age. Simply talking to your insurance provider can also point the way to assistance: “In my experience they’re incredibly helpful once you get someone on the phone,” says Robinson-Lane.

The next chapter of care

By the late winter of 2021, months after she first came home from the rehab hospital, Eileen Salant started feeling stronger, and by April of that year she was able to venture out to the kosher deli in her neighborhood. By March of 2022, with the help of her niece Louise, the two took longer adventures — taxi trips to Nordstrom and Saks Fifth Avenue in Manhattan. “I was just determined to get out,” Eileen says.

Later that month, she had a major setback, and was hospitalized again for a week. But thanks to Louise’s help, and the support of paid caregivers at home, Eileen eventually bounced back.

Louise says that despite the difficult circumstances, she and her aunt have become closer these past few years.

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Louise says that despite the difficult circumstances, she and her aunt have become closer these past few years.

Gabriela Bhaskar for NPR

“She’s been wonderful to me,” Eileen says of Louise. “Like a daughter would help her mother.” Despite the difficulty of the last few years, the two are closer now, Louise says, and have come to respect and love each other.

Louise has advice for other long-COVID caregivers: Find a doctor who is knowledgeable about the disease, or at least willing to learn more about it. She also recommends the online patient-support group Survivor Corps. “The best resource is other people,” Louise says.

Other family caregivers praise the Body Politic COVID-19 support group. And LaGrange recommends simply finding someone to talk to who is not part of the family — perhaps a friend or a therapist.

Although specific treatments for long COVID are elusive so far, many people do eventually recover on their own. The biggest study so far found that long COVID symptoms endured an average of 9 months for people who’d been hospitalized with COVID-19, and 4 months for those who hadn’t needed hospitalization .

Louise also reports that her long-COVID symptoms have finally eased, and she, too, is feeling better. The overwhelming fatigue seems to be gone, although she’s still tired, and she even started teaching piano again for one nearby family.

She’s been able to step back a little bit from her daily responsibilities in caring for her aunt, although she knows that could change at any moment. She still sleeps with her phone by her bed, she says — but now at least she sleeps through the night.

Kat McGowan is a freelance writer in California focused on caregiving. This story was produced with support from the Alicia Patterson Foundation.